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Hemochromatosis is the #1 genetic killer in the U.S.,
affecting nearly two million Americans, yet most victims
are unaware that they have it. Hemochromatosis is also
very common in Europe and Western Africa. If left
undetected and untreated, hemochromatosis is fatal in
most cases.
Hemochromatosis is an inherited disorder of the small
intestine that causes a person to absorb too much iron
from his food. Over time, iron builds to toxic levels
and destroys many organs. Symptoms of toxic iron excess
can differ greatly from person to person. Symptoms might
include fatigue or depression, arthritis, impotence and
infertility, diabetes, heart disease, and liver disease
or liver cancer. Fortunately, early detection and
treatment will prevent iron excess and its toxic
effects.
Although hemochromatosis is widespread, the blood test
for it, called a "fasting Percent TIBC Saturation"
(percent TIBC SAT), is rarely included in general
screenings. A 1994 study in the Archives Of Internal
Medicine showed the cost effectiveness of the test "over
a wide range" of conditions and recommended adding the
test to routine blood screens. The test costs $40-$60 in
most areas and is covered by many insurance plans.
The Hemochromatosis Foundation is a nonprofit
organization that has worked for nearly twenty years to
improve the lives of people with hemochromatosis. For
more information about the disease, screening events in
your area, or how you can help in finding the cure for
hemochromatosis, contact your local chapter, or write
to:
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